All India
Institute of Medical Sciences (AIIMS) has requested the Ministry of Health for
a mandatory linkage between Unique Health Identification (UHID) and Aadhar. This
seems like a simple and a straightforward suggestion but deep down it has major
implications for delivery and democratisation of healthcare. I would argue that
this linkage should be mandatory for all hospitals, both public and private
primarily because it empowers the patients to have access to their own medical
records.
As part of the
digital initiative, AIIMS issues a UHID to each patient, who visits the
hospital for the first time. In subsequent visits the patient is expected to reproduce
this number. The UHID plays an instrumental role in documenting the patients
entire journey in the hospital. With this it is possible to track, the date and
time of the patient visit, the departments where the treatment was offered, the
tests and the sub-tests that were undertaken and their results, if the patient
was admitted (in-patient) then date and time of the ward in which the patient
was admitted, the procedures performed, date and time of discharge, the release
description (such as cured, expired etc.) and the diseases codes. Within AIIMS,
availability of this data helps the doctor to develop a more accurate medical
history of the patient. Also, this significantly reduces the burden on the
patient to either produce past medical records or recall all the necessary treatments
or procedures done. This has significant impact on quality of care by reducing
the risks of medical errors and negligence, better patient management, avoiding
unnecessary investigations, etc. In practice, however, there are many patients
that are either unable to produce records of their previous visits to the
hospital or do not recall the UHID number, as a result of which a new UHID is
issued and in the process, precious medical history of the patient is lost. Aadhar
has a potential to resolve this issue. Aadhar is a nation-wide unique identification
which is used for multiple purposes, therefore, significantly easier for
patient to reproduce and if this is linked to the UHID then it is much easier
for the doctors to access the medical history without putting any burden on the
patient. Moreover, the patient has cheap and reliable access to his own medical
records.
A medical record
is the property of the patient and just like any property its value depends on
proper identification, accurate documentation, easy transferability and the
rights to access it. If all hospitals UHID are linked to Aadhar then it has the
potential to create a universal health records for the patient. With Aadhar the
patient can request the hospital to transfer his medical records to his digital
locker which he can access from anywhere at any time. This will lead to
democratisation of healthcare delivery.
Let me
illustrate this with an example. Consider a patient from a village in Bihar who
is visiting a district hospital for an ailment. Under the Digital India
initiative, the District Hospitals are expected to maintain a Hospital Management
Information System (HMIS) that records the details of patient visits, disease,
treatment offered and outcomes (cured, referred, expired, etc.). If this information was linked to the patients
Aadhar, then this could potentially be stored in the patient’s digital locker. Now
suppose the patient is referred to a tertiary healthcare such as AIIMS (more
than 50 percent patients in AIIMS come from UP and Bihar). With easy access to
the digital locker at any time, the patient can transfer all the past medical
information to the doctor in AIIMS who will have a far more accurate medical picture
than a scenario in which he has to rely only on the testimony and the records
of the patient. Such a portability of medical records has significant impact on
the quality of care that the patient receives by reducing the risks of medical
errors and negligence, better patient management, avoiding unnecessary investigations,
etc.
Perhaps in the
future it would be possible to link all medical visits, from the primary health
centres, community health centres, secondary hospitals to the tertiary care
hospitals, to the Aadhar. This will help in the development a comprehensive health
record of the patient that is accessible anywhere at any time.
As a first step
in the development of a comprehensive health record of the patient it is
important that the government makes it mandatory for all the hospitals to link
their UHID to Aadhar and give digital access to the patient to their own medical
records which can be stored in the digital locker. To achieve this the
government must take steps to ensure that basic data on each patient is
collected in all hospitals:
1.
Date and time when the patient was admitted.
2.
Vitals of each patient: Weight, Height, BP,
Hypertension, Diabetic.
3.
Disease code using the ICD-10 codes.
4.
Date and time stamp when the patient was
discharged.
5.
Discharge outcome: Cured, Death, LAMA, etc.
In conclusion,
linking UHID to Aadhar allows for the development of the comprehensive health records
of the patients. It empowers the patient with the right to access his own
medical records anywhere at any time. An important step in the democratisation
of healthcare delivery.